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There is now a CONTENT FREEZE for Mercury while we switch to a new platform. It began on Friday, March 10 at 6pm and will end on Wednesday, March 15 at noon. No new content can be created during this time, but all material in the system as of the beginning of the freeze will be migrated to the new platform, including users and groups. Functionally the new site is identical to the old one. webteam@gatech.edu
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Atlanta, GA | Posted: June 7, 2019
Autism, Genetics & Identity: Exploring the Complexities of Autism Genetics Research
June 11, 2019 - 12:30 pm
A Public Conference convened by The Center for Research on Ethical, Legal & Social Implications of Psychiatric, Neurologic & Behavioral Genetics and The Hastings Center
Decades of research into the genetics of autism have revealed remarkable complexity. Not only is there no single gene for autism, numerous genetic changes can underlie the condition. With this surprisingly intricate genetic story has come an increasingly nuanced picture of how people with autism and their families understand the condition and make sense of autism genetics research.
Beginning with the work of Prof. Jennifer S. Singh, author of the book Multiple Autisms: Spectrums of Advocacy and Genomic Science (University of Minnesota Press, 2016), this conference will explore how autism emerged as a genetic disorder, what has been learned, and what is currently under study. Speakers from social science, genetics, and autism advocacy will explore how genetics research affects those who study autism and those who live with it.
PROGRAM:
12:30-1:00 – Registration
1:00-1:15 – Welcome and introduction to the conference: Ruth Ottman, Josephine Johnston
1:15-2:15 – Keynote Talk: Multiple Autisms: Spectrums of Advocacy and Genomic Science • Speaker: Jennifer S Singh, Georgia Institute of Technology
2:15-3:00 – It Changed Everything and it Changed Nothing: What it Means to Receive a Genetic Cause of Your Autism • Speaker: Wendy Chung, Columbia University
3:00-3:30 – Break
3:30-4:15 – Neurodiversity, Autistic Identity and the Future of Autism Research • Speaker: Ari Ne’eman, Author, “The Right to Live in This World” (Simon & Schuster); President and Co-founder, Autism Self-Advocacy Network
4:15-5:00 – Looking Toward A Destination: Establishing Trust and Transparency in Autism Research • Speaker: Amy Gravino, ASCOT Consulting
5:00-5:30 – Panel and Audience Q&A: Panel: Jennifer S Singh, Wendy Chung, Ari Ne’eman, Amy Gravino; Moderator: Paul Appelbaum